A Community-Centred Protocol for Ethical and Scalable AI in Health Care

Policy Brief No. 217

November 10, 2025

Punitive intellectual property (IP) frameworks and inadequate data sovereignty protections are significant barriers to equitable artificial intelligence in health care. These barriers disproportionately affect marginalized populations, necessitating urgent reform. The authors propose a novel, community-centred AI protocol that integrates FAIR (Findable, Accessible, Interoperable and Reusable) and FHIR (Fast Healthcare Interoperability Resources) standards with flexible IP governance and robust community engagement to address these challenges. This approach may be applied through a system that manages IP rights to drive public benefit, as well as a data collective that provides managed access to data so as to prevent misappropriation, and thus effective access to important data that would contribute to greater innovation and access to information within health care.

About the Authors

Abbas Yazdinejad is a post-doctoral scholar in the Artificial Intelligence and Mathematical Modelling Lab at the University of Toronto.

Maral Niazi is a former Digital Policy Hub doctoral fellow and a Ph.D. student at the Balsillie School of International Affairs with a multidisciplinary background in political science, human rights, law and global governance. Her research with the Digital Policy Hub expanded on her doctoral research on the global governance of AI where she will examine the societal impacts of AI on humanity.

James (Jim) W. Hinton is a senior fellow at CIGI, where he contributes expertise on intellectual property (IP) and innovation.

Jude Kong is a Canada Research Chair in community-oriented AI and mathematical modelling at the University of Toronto, where he directs the Artificial Intelligence and Mathematical Modelling Lab.

Jake Okechukwu Effoduh is a tenure-track assistant professor in the Lincoln Alexander School of Law at Toronto Metropolitan University.

Anna Shin is a 2025 graduate of Western University’s law school and currently articling at Own Innovation.